Spina Bifida Program
At Children’s National Hospital, we understand that families have many questions about their child’s condition and care. In addition to any resources your provider may give you, our online resources can also support your ongoing treatment journey.
Helpful Websites
- Spina Bifida Association
- Centers for Disease Control - Spina Bifida information
- School Guidelines for Patients with Spina Bifida (PDF)
- New Patient Packet (PDF)
- Common Urology Medications for Patients with Spina Bifida (English PDF and Spanish PDF)
Related Programs at Children's National
Constipation Guidance
Most children with spina bifida are at risk for constipation. Learn how to manage the symptoms and create a plan.
Self-Catheterization
Most children with spina bifida will have a neurogenic bladder. Teaching your child self-catheterization will give them more confidence and freedom to use the bathroom when they are at school or out with their friends.